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file time: 2008-02-16

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Narrative analysis of mivia 

IS 356 E-Gov00

Presented by Angela Chen

 

Introduction  
 

The economics pressure of increasing healthcare costs and great healthcare outcome are driving the search of new approaches to health management.  Currently, public policy is attaching importance to the role of consumers in managing their own health while partnership with healthcare providers.  Governmental agencies are taking steps to close the gap of access to health care information and communication, and National, regional, state and medical center are evaluating the effects of information technology used on health.  This narrative analysis will focus on the electronic Personal Health Records on the vulnerable and underserved population-the migrant and seasonal winery worker in Sonoma, California.   
 The migrant workers often find it difficult to access health care, and even when they are successful, the care they receive is sporadic and fragmented as they move form job to job and community to community.  Due to this nature, migrant workers fall into the categories of vulnerable and underserved group.  In order to minimize the barriers that underserved populations continues to face in accessing or using of health information, the Informatics has been identified a critical role in designing a health system that produces care that is safe, effective, patient centered, timely, and efficient, as well as a strategy for reducing health disparities in underserved populations.     

Background  
 

MiVIA, which means 00y way00in Spanish, is an electronic Personal Health Record designed for the migrant and seasonal workers in Sonoma, California. in 2002 under the collaboration of Vineyard Worker Services, Saint Joseph Health System-Sonoma Country, and Community Health Resource & Development Center.  The following video will give you a comprehensive understanding about MiVIA program. 
 

 

 

What is narrative interview? 

The narrative and episodic interviewing techniques are qualitative research methods that sustain a person-centered paradigm of human information behavior and that provide a particularly useful methodological framework for studies of everyday life information-seeking behavior.   
According to Jovchelovitch and Bauer, narrative interview is described as a qualitative research method used to stimulate interviewees or study participants to express their experiences and view of the topic being studied through telling stories or narratives.  It is believed that the perspective of the interviewee is best revealed in stories where the informant is using his or her own spontaneous language in the narration of events.  Therefore, the interviewees will not be restrained by a specific form of answers but an open-end story he/her wants to talk about.  
 
 

Click to listen Jessica00 Interview: And we came to realize that the patients we were enrolling didn00 have education on the computer or the internet.  So we start thinking maybe we need to go a little bit further, for the user actually to be able to use it.00/b>  
  (Interview: From the doc00 point of view, is filling out patients00information on MiVIA web a burden or are they all for it?)  00ah, when we first started it was a burden, we have to write down the charts and we have to go ahead and input into the computer.  You know it was not really having it until we started calling people and doing little survey, you know, asking 00re you using it? How often or how are you comfortable using it and etc?00nbsp; And it was until I brought the numbers back to the physicians we are worked with and they were really surprised that how many people were actually using it.00/b>  

5.  Challenges/recommendation  
 

Two main challenges: 

00t is hard to promote the MiVIA program to the clinics or physicians,00nbsp;                       

00acking of funds, computer equipment and human resources to support the program.00/b> 

 

Recommendations  
(Please see the file for the complete recommendations.) 
 

Jessica, seems to me, is a critical bridge in terms of training and promoting between the MiVIA program and the patient.  The MiVIA program is hard to prevail among the underserved populations without the role of Jessica.  Without technical computer knowledge, the underserved population will not know how to get on computer, not even to mention understanding the benefits of MiVIA.  Without Jessica, there00l be a technological gap for the MiVIA users.  Therefore, it is essential to recruit more staffs in Jessica00 role in terms of outreaching and training.   
The number of enrollment of the MiVIA program is a decisive factor for the physicians/clinics to adopt MiVIA program.  Showing good numbers worth more than a thousand words.  Thus, it is recommended that a comprehensive statistics/survey of MiVIA usage be conducted to serve this purpose.  Further, providing physicians statistical benefits of adopting MiVIA, such as improving accuracy of information across the continuum of care, saving redundant paperwork, shortening the wait for obtaining patient00 lab result and etc, to physician/clinics will certainly increase physicians00 interest.     

Recommendations (Con00) 

Outreach/marketing plays a significant role for the success of MiVIA program. The followings are various sales pitches can be used to promote the program.   
Saint Joseph hospital is the only hospital offering community service as well as a catholic organization, MiVIA program should utilize the 00rand identity/trust00 to promote the program.   
00ustomer perceived value00is an important concept from marketing perspective.  MiVIA card turns out surprisely to be a big hit by serving as an ID card due to most of the migrant workers can not obtain formal ID cards for their illegal immigrant status.  Follow this logic, MiVIA program will be prevailing if MiVIA card or online health record system is designed to suit users00extra needs.  For instance, according to the cases told by VWS workers, the migrant workers are mostly young, single male.  A lot of them have sexual transmitted disease issue that they are unwilling to share or disclose with.  Therefore, if MiVIA online system supports a search function for the non-disclosable diseases in Spanish version as a side benefit besides storing personal health record, the potential clients may be increased as they perceive more values from the system.       

6.  Coda 
 

While Jessica was asked what her day is alike when she is with the mobile clinic, she described how she outreached and enrolled the patients as telling her everyday story.  From that, I thoroughly agree that story telling approach gives me a deeper understanding of interviewee00 perspectives.  For instance, she would be able to open up and disclose more details about how she has to train the patients to use computer from scratch to the point they can use the MiVIA program without her help.  Without narrative interview, I would not know what difficulties she needs to go through and how much effort she needs to put on the training session in such detail.  As stories went along, Jessica further shared her grandma00 case with MiVIA program.  Those details definitely will not be presented or disclosed in the context of true/false or Likert-scale survey. 

 

Coda (Con00) 
 

When carrying out the analysis of data from narrative interview, I use Labov00 structural approach with some modifications to identify the story components and select illustrative quotes which highlight any significant parts of the narratives.  Using this structure allows me to understand the MiVIA program at complete angles.   

Various stories led me to a deeper, thorough understanding of the mindset of the MiVIA users.  Those insights are derived from the richer data- narrative interview, and they enable us to evaluate the MiVIA program comprehensively. 

While governmental agencies, medical centers or health organizations are taking steps to empower citizen to access the health care information and communication and evaluating the effects of information technology used on health, this MiVIA program could be a pilot project to assess the electronic health system used by underserved populations.   

 

Evaluation and Extension 
 

In order to ensure we achieve our learning object, you should be able to answer the following questions. (Please answer them in the short essay format. ) 

What are the two toughest challenges of Jessica00 job?  
What the values/benefit of the MiVIA program perceived from the users?  
Please describe what the training session is alike?  
List few sales pitches for promoting MiVIA program.  
Narrative interview is particular useful for what kind of study and why?  

 

 

websites 

MiVIA 

https://www.mivia.org/About_Us.aspx#intro 

https://www.followmezone.net/viahomepage/sign_up_2.shtml 

Narratives 

http://web.cgu.edu/faculty/wickera/working.htm 

http://www2.chass.ncsu.edu/garson/pa765/narrativ.htm

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