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Help line free call 0808 800Charity number 207495 Leeds and DistrictA warm welcome from all the committee Joyce, Peter, Andrea, Barbara, Trish,Tim and Margaret. Some of the contents in thispublication as been taken from the MS web sitewww.mssociety.org.ukGibson sentencing statement26 Jan 2007The MS Society is pleased Mark and Lezley Gibson were spared a custodialsentence.Dr Lee Duster, Head of Research and Informationsaid: 00he Society does not support or recommend the use of illegalcannabis but there is evidence that cannabis-derived medicines may helpto reduce neuropathic pain and spasticity, common and extremely unpleasantsymptoms of MS for which there are few treatment options00he MS Society is continuing to invest hundreds of thousands of poundsin vital research into cannabis-derived medicines and their effects.We hope that results over the next few years will give us a better pictureof how cannabis extracts can help people affected by MS.00/font>A lady rang me after reading the lastnewsletter and asked if I would like a story on Mark and Lezley, shekindly sent it to me and after reading it myselfI would like to pass it onto you. Itis a long story therefore I shall print it in twoParts. I would like to say thank you to everyonewho has contributed to this month00 newsletter folks keep them comingin. Don00 forget the first Social of theyear is not to far away 12th March 2007 So come along and let00 make2007 socials a great success.If transport does not pick you up pleasephone Barbara on07891685762 to arrange alternative transport. Pot ChocolateOnce a week, a village postman in Pembrokeshiredelivers a parcel of the 00agical medicine00that hastransformed Elsie Jones00 life. For ten years, as Multiple Sclerosis(MS), gradually conquered her nervous system, Mrs Jones felt increasinglydespondent about the loss of both body and dignity00the humiliatingincontinence, the uncontrolled muscle spasms, the searing pain thatmakes her husband Bill00 nights as fitful as her own. The doctorsoffered little hope to 55-year old Mrs Jones. Her illness was too advancedfor her to try the drug beta-interferon-said by its supporters to reducethe frequency and severity of attacks, especially in the early stages00and her pain could not wait for cannabis-based medicines currently undertrial.00he was just vegetating away, quite motionless apart from her lefthand, and I would have done anything to give her a better quality oflife00 her 61 year old husband explains in their specially adaptedfifties terrace house near St David00. 00And then, two years agosomeone told me about those wonderful people making the medicinal chocolate.That was everything changed.00Since then Mrs Jones has been receivingfree weekly gifts of the chocolate from a group of strangers who riskjail to help her and hundreds like her. The ingredients list, that Ican not give for legal reason00 has a warning 00eep out of the reachof children00 According to Bill Jones, has dramaticallyeased his wife00 symptoms without getting her stoned. 00t didn00 workimmediately, but over a month there was a vast change,00he recalls.00he00 more relaxed now, can move her legs without much pain, andis even getting to sleep again.00/font>Mrs Jones00who remains unable to talk00still demands the constantattention that caused their family butcher00 business to collapse,but she hints at a smile when, twice a day her husband of 38 years asksher to open her mouth 00or choccy time0000There are a lotof good people out there,00he sighs, pointing to a padded envelopewith a Cumbrian postmark. 00eople who00l take a risk to benefitothers. I don00 know who they are, but I00 like to shake them bythe hand00there are an awful lot of grateful people.00The depthof that gratitude is an extraordinaryTestimony to an underground mail-ordernetwork that refuses to wait for cannabis 00ase medicines to be legalised.For two years, as pharmaceutical companies have prepared to tap a marketworth an estimated 拢250 million, thousands of cannabis-laced chocolatebars have been arriving free of charge in the homes of MS sufferersacross Britain. The 150g 00anna-choc00as they areknown, is made in volunteers00homes. With raw materials donated bywell00wishers, and supplied only to vetted MS patients00300 at thelast count00of whom most, like Elsie Jones, claim their lives haveimproved immeasurably. Until now, the internet00based network hasmaintained a necessary secret, aware that its members risk jail forgrowing, possessing and supplying the drug. But faced with threatsof exposure by online 00igilantes00Pot ChocolateAs pharmaceutical firms gear up for a拢250 million market in legalised medicinal cannabis, an altruisticunderground network is supplying Multiple Sclerosis sufferers with freechocolate bars laced with the drug. 00f they bust me and Mark they00put over 200 people out on the streetsLooking for cannabis.WHAT IS WORSE?00/font>And aware that the political pendulumis swinging fast towards therapeutic legalisation00it agreed to allowthe Telegraph Magazine to follow its work. The group calls itselfTherapeutic Help from Cannabis for Multiple Sclerosis (The 4 MS), andis nothing if not consumer-orientated. Inquirers, who must provide adoctor00 note to confirm their illness, may choose milk, dark, vegan,or diabetic chocolate, and are recommended to take one piece three timesa day to alleviate symptoms without causing cannabis high.Typically the 00lients00 as theyare known are respectable professionals, mostlyIn their 50s and 60s who would have littleinterest in cannabis had not they, or someone close to them, begun adesperate search for help. No payment is required, but stamps and minordonations are welcome. And although the chocolate does not work forevery sufferer, when it does the effect is deeply moving, as revealedin the letters received at the organisation00 north Pennines outpost. 00ear whoever00 writes anelderly woman in Wokingham. 00hanks so much for my first supply ofcannachoc. It is wonderful. For the first time in many, many monthsI do not have 00erking00legs in the evening and can sit still andwatch TV!From Essex, the scribble of a woman00unsteady hand testifies. 00ince taking cannachoc, I can honestly thatthe aching subsides and I can usually get to sleep. I don00 feel anyhighness at all Thank you so much00 From Rhyl! 00ithout it my lifewould be one long pain, literally. Please can I have another bar? Ihad six squares of the last one and then I managed to tile the bathroom.00nbsp;And another from Gwent, 00t has taken me several years to take theplunge. I was reluctant to ask my husband to buy cannabis in a pub orstreet corner and risk arrest.00/font> None is under any illusionabout the crimes they and their unpaid suppliers are committing. Butwhatever their views about the legality of recreational cannabis, cannachocusers share a consensus that the current law fails people with MS andother diseases who find it brings significant medical benefits.Few of those we contacted were surprisedthat GW Pharmaceuticals, licensed by the Government to test cannabis00based medicines, had recently reported a series of successful trialswhich the company hopes will allow the NHS to offer its cannabis-basedoral spray later this year. 00hat took them so long?00asked a youngmother in Argyll. 00t00 not as if we haven00 been telling theGovernment that it works.00The House of Lords accepted this four yearsago, when its Science and Technology Committee stressed 00he needto legalised cannabis preparations for therapeutic use00Until which time it urged tolerationof 00enuine00medicinal users. GPs certainly seem to share this view,judging by the number privately referring patients to the The4MS .orgwebsite00as are care home owners and, apparently, some police officers.As Bill Jones says, 00 really don00 care that it00 illegal. Itworks for Elsie, and I made my mind up not to buy from a dealer, asyou don00 know what you are getting. I00e told the neighbours. Theyjust say 00ood for you00/font>Those bearing the greatest risk are volunteersLike Mark and Lezley Gibson, a couplewho have been making the chocolate from their home in a small Cumbriantown. They ask that the town00 name is not specified, but that maybe more to discourage desperate wheelchair-bound MS suffers from arrivingon their doorstep, as has been happening. It is not as if they are hardto find after two years making and posting the weekly chocolate packages.Legalised Cannabis Alliance stickers cover the car parked Outside their terrace house and thelocal tourist information office directs inquirers to their front door. They wrote to the Queen last yearto explain what they do, and sought a Jubilee year amnesty for medicinalusers. Buckingham Palace replied that their letter had been passed tothe Home Office. 00nd David Blanket's chosen not to reply00 MarkSays 00ever mind00To be continued.Election of Branch Officers and CommitteeIt is coming up to the time of year whenyou need to start thinking of who you would like to elect to representthe Leeds and District MS Society. Branch chair, Secretary, Treasurer,and MS Support Officer (Welfare Officer) and General CommitteeMembers are the only Positions directly elected.The Branch chair is elected to servea 3 year term in office...Branch chair currently held by MargaretMoodyBranch Secretary currently held by JoyceBlakeyTransport Officer currently held by BarbaraCampbellPublicity Officer currently held by TimRodwellMembership Secretary currently held byChristine ClemmensNewsletter Editor currently held by MargaretMoody.Acting Treasurer currently held by PeterDanyluk.Social Secretary currently held by MargaretMoodyActing Local Support Officer Currentlyheld by Margaret Moody.Committee membersAndrea BinnsTrish CunnisonVacant rolesTreasurerFundraiserLocal SupportSocial SecretaryMS Support Officer VACANT. Tasks and responsibilities:*Establish contact with, and support,local people with MS, their families and carers.* Help people withMS and their families and carers to access services that meet theirneeds.Liaise with, and make referrals to,local health and social services and other agencies concerned with theprovision of services to people with MS.Provide information about and accessto individual welfare grants available from the branch and MS Society. Assist with grant applications.Take telephone calls from and visitall people with MS.Work with the branch committee andother volunteers to ensure that the welfare needs of all local peoplewith MS are identified.TreasurerVACANT.Tasks and Responsibilities.Maintain accurate accounting recordsPrepare regular reports includingaccounts for the branch committeeEnsure appropriate financial controlsare established and complied withPrepare annual accounts and liaisewith auditors to ensure submission of the branch accounts to MSNC inaccordance with the prescribed Format and timescales.Act as one of the signatories tothe branch bank account and deal with the branch00 bankers.Fundraiser.Vacant Tasks and Responsibilities *Agree and develop an annual fundraising plan with the branch Committeeand branch members.Operate a fundraising sub-committeewhere necessary, to plan andArrange support for fundraising events(liaison with the chairperson and Newsletter EditorCo-ordinate volunteer help in relationto fundraising activitiesEnsure that fundraising materialsare available to those people wishing To raise money for the branch.Ensure the branch committee and membersare aware of current legislation relating to fundraising and the charitiesact.Ensure the branch committee and membersare kept aware of national Society fundraising initiatives which canprovide additional branch income.Assist the branch committee in applyingfor local licences and permits Relating to fundraising projects.Liaise with the Society00 fundraisingdepartment concerning applications To companies or trusts. Social SecretaryTasks and Responsibilities Find out whatsort of outings, events. Speakers ECT would be popular .With local peopleaffected by MS. (liaise with the Newsletter Editor and whole committee)Arrange talks, outings, events, (liaisewith Secretary) Find and book venues for meetings,ensuring that they are suitable for the event and fully accessible. Ensure that arrangements are made forany catering that is required. Contact speakers, confirm arrangements,arrange for payments of expenses where appropriate (liaise with Secretaryand Chair)Plan and produce a 00alendar of events00for the branch (in liaison with the whole committee). Branch Committee Meetings.Any fully paid up member of Leeds andDistrict Branch MS Society is welcome to attend Branch Meetings. Members will not be able to take partin the meetings but can put forward any question to the committee, thesequestions must be in writing and received by the Branch Secretary atleast I week prior to the meeting.Dates for committee meetingAll meetings are held the first Tuesdayof each month at Stanningley Sports Club from 7.30pm to 10 pm.6th March 3rdApril 8th May 5th June3rd July7th August 4th September9th October6th November4th December.Due to the lack of a fundraiser and volunteersthe committee has to look at ways in trying to save money, as well onhow to raise funds for the branch. At January00 committee meeting therewas a few suggestions on how we could raise some funds, the suggestionsoffered were, coffee mornings at member00 homes, we could supplytea and coffee to whoever would like to hold one, A lady00 nightexample, Ann Summers, and cheese, wine and chocolate fountain party,and Peter have a Tarts and Nun night . Stars in their eyes was put forwardhas was a karaoke night. It was suggested that we ask members to sendin their favourite recipes and form a recipe book so we may be ableto sell, it was too suggested that we could produce Leeds and Districtcalendar for 2008. All money raised for the branch goes towardsWelfare (that takes up a lot of the funding),Social evenings, transport and outings. It was pointedout that we need more members to come to the social evenings 00es we do realise that somemembers have to be home for home care to put them to bed00 butwe do feel that more members could make a little more effort to comealong, it was too felt very strongly to remind members that thisis your branch USE IT or LOOSE IT. Then we looked athow we could save money and I came up with the Newsletter. I suggested why not put it onto a DVD.or by email for those who have a computer. To produce the monthly newsletterit cost00 the branch, 拢316.96p this Includes ink, paper, postage and envelopes. Some-one said 00hy not produce thenewsletter every two months or quarterly00 I replied 00ome memberslike to get the newsletter monthly as this is the only way that theyget know what is happening with-in the Leeds branch00 By putting thenewsletter onto DVD's or sending via email would save the branch money,and the money saved would go towards transport, welfare, social eveningsandOutings. HolidayBungalows, Caravans & Chalets the M.S. Society branches own severalself catering holiday homes that are set up and equipped to cater forpeople with M.S. We have our own situated at Hoburne Naish Caravan Parkin New Milton Hampshire.The society does print a small brochurethat has a more complete list that is obtainable from Head office Tel.No 0208 478 0750 but those that are not included tend to be booked upvery early.This is one example of some of the holidayhomes.Wiltshire, Bridlington, Yorkshire.M.S. People interested in booking thischaletContact Jennifer NewdallWakefield and District BranchOn 01924 256 477A basic timber built chalet that sleepsup to 6. Close to club house, supermarket and fish and chip shop.Ideally situated to explore the EastCoast. Scarborough, Bridlington, Filey, the North York Moors and muchmore.KitchenFirst BedroomSecond BedroomShower roomSorry for the poor pictures.Think Before You SpeakHave you ever asked your child a question too many times?My three-year-old son had a lot of problems with potty training andI was on him constantly.One day we stopped at Taco Bell for a quick lunch, in between errandsIt was very busy, with a full dining room.While enjoying my taco,I smelled something funny,so of course I checkedmy seven-month-old daughter, she was clean.The realized that Dannyhad not asked to go potty in a while.I asked him if he needed to go,and he said "No".I kept thinking"Oh Lord, that child has had an accident, and I don't have anyclothes with me."Then I said,"Danny, are you SURE you didn't have an accident?""No," he replied.I just KNEW that he must have had an accident, because the smell wasgetting worse.Soooooo, I asked one more time, "Danny did you have an accident? This time he jumped up, yanked down his pants,bent over, spread his cheeksand yelled"SEE MOM, IT'S JUST FARTS!"While 30 people nearly choked to death on their tacoslaughing, he calmly pulled up his pantsand sat down.An old couple made me feel better,thanking me for the best laugh they'd ever had!Branch contacts Branch secretaryJoyce BlakeyActing TreasurerPeter DanylukTransport OfficerBarbara Campbell 0113 2555615Membership Secretary ChristineClemmensBranch ChairMargaret Moody Dedicated line0113 2535375Email margaretmssociety@msn.comLocal SupportVacantNews letter EditorMargaret MoodyFundraiserVacantSocial SecretaryVacant Committee MembersTrish CunnisonAndrea BinnsTim RodwellLocal Contacts MS NursesSeacroft Hospital Ward N Leeds Community MS Team CRU St Mary00HospitalWest Yorkshire MS Therapy CentreLeeds RoadRawdonLeedsLS19 6JY0113 2504528Philip CreedWill writer0113 2174159Leeds Alternative TravelCommunity Transport0113 279 5050Leeds and district web sitewww.mssociety.org.uk/leedsPlease tick box and return to me NewsletterEditor Margaret Moody154 Westerton RoadTingleyWakefieldWF3 1QAI would like the newsletter inDVDEmailPaperNameAddressPlease tick box and returnto me Newsletter EditorMargaret Moody154 Westerton RoadTingleyWakefieldWF3 1QAI would like the newsletter inDVDEmailPaperNameAddress.

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